Rooted and Rising

NIV Isaiah 40:30-31

“Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.”

What a beautiful promise.

 What stands out is this contrast: On one hand, weariness is certain.  On the other hand, renewal is promised

 This promise is for every person in every season, whether studying for school, working, parenting young or older children, juggling various work and family commitments, caring for elderly parents, drawing close to retirement, or beyond -  it reminds us that God's strength is available to us all.

 I read a great sermon by Alexander Maclaren that I will reference a few times. Alexander notes that Isaiah points to the certainty of weariness and decay in this verse.

We will all inevitably face:

  • exhaustion
  • responsibilities
  • sorrows
  • burdens
  • aging

Can anyone relate to feeling tired? Overwhelmed? Stretched beyond capacity? Recognizing the limitations of aging?

 We are all in different seasons… we all know what it is to be tired and weary…We have this in common: our humanity ensures our limitations. Even Jesus became weary in his humanity. But then comes that powerful word: “BUT “we will renew our strength.

How do we get that renewal? By trusting in the Lord, which can be explained as an expectant dependence on Him.

My Story

I've been a Christian for most of my life. I grew up in a Christian family and felt God reveal Himself to me from an early age. I have always felt His loving, tender hand in my life. What a gift that is! Of course, I went through ‘stuff,’ and it wasn't easy, but I never knew what the Psalmist, David, meant when he said, ‘though I walk through the darkest valley,’ until the last few years. I came to a place where I could truly identify with what the apostle Paul describes as “troubles far beyond our ability to endure” in 2 Corinthians 1:8. The valley of the shadow of death became a real place to me, one I walked in almost daily—the dark, cold, frightening gorge. I felt oppressive darkness like I had never before, and I heard the roar of the enemy. It has been deep, overwhelming, and agonizing. The trauma of household chaos, aggression, and explosions at any given moment has been part of my valley.

My husband and I are privileged to be parents of four beautiful children. They are, of course, all unique with different strengths and talents. They are each a God-given blessing. What I am going to share today is my story as a mom, and it isn't a reflection on my family’s character or who God fearfully and wonderfully made them to be. This is the story of how various challenges have affected me, and how I have leaned on God's promises and found strength in His presence. My story continues. I'm still in the trenches and still have to allow God to walk me through very intense moments, days, and weeks, trusting that His grace is sufficient.

In the early years of having my kids, I began to think I just wasn't cut out to be a mom. Clearly, I was getting it all wrong and felt terrible for wanting to run away a lot. I battled with pre- and postnatal depression in most of my pregnancies. The days felt long, intense, and chaotic—filled with noise, conflict, and emotional intensity. I often felt like I was simply trying to make it through the day. I remember sitting on the kitchen floor, staring at the car, wishing I could drive away.

Over time, we were dealing with multiple explosive meltdowns a day, and the chaos felt relentless. I didn’t understand what was happening and assumed it was our parenting. I homeschooled for a couple of years, thinking that if I spent more time with them, then things would get better. I have great respect for homeschoolers, but for me, it was an incredibly difficult period where I saw no signs of improvement in behavior and had little to no break from it. The chaos was like a hurricane.

As the explosions and difficulties with daily functioning became more apparent, I began to wonder, during the year they went back to school, if more was going on. Maybe we as parents weren't entirely at fault. Maybe it wasn't their fault either. Maybe there were brain differences I wasn't aware of. There began the journey of discovering the truth about what was going on. Over the course of one year, we found answers and diagnoses for three of the kids. That year was particularly tough; it felt like one blow after another. No matter how much you expect a diagnosis, nothing prepares you for getting it. Or when you're not expecting it and it comes anyway. I had both experiences. It is a journey of grief. Not because your child is less special or you see them differently, but you grieve your unmet expectations and the limitations and challenges you can foresee.

The challenges kept coming, and they were fierce. Day after day, the challenges were piled on us. The physical, mental, and emotional strain was at times unbearable. There were times I ended up in the fetal position, weeping before God. Eventually, I became emotionally detached—like I was watching my life from the outside, unable to keep up.

It can feel like a lonely journey. With what we were dealing with, I honestly didn’t know anyone else going through it. It was something we battled quietly. I would turn up to pick the kids up from school and feel like I was bleeding everywhere because of the pain I was feeling, and no one knew. 

Seeking professional help and resources was far more challenging than I anticipated. I was given many different strategies—often conflicting—and trying to implement them left me feeling frustrated and defeated. Even very well-meaning people offer advice that can be hard to hear when you feel you have tried everything. I often felt embarrassed and judged. If you haven’t lived it, you really don’t understand how complex it is.

I started to live in a perpetual state of fear and anxiety, not knowing what would happen next. I became hyper-alert and battled depression to the point where I was struggling to function. If you’ve lived in an intense caregiving role like this, you understand the trauma and stress it brings. I don’t use the word ‘trauma’ lightly; at one point, I felt I was becoming a shadow of what I was. I did seek medical help for myself because I wasn’t doing well at several points in this journey. The reason I share this is that, even though we know God sustains us, there is no shame in seeking medical help and advice when needed, especially when your brain chemicals are out of balance. I think as Christians, we need to move away from the stigma of mental health and seeking medical help.

I can say that if I didn’t know Jesus, I don’t know where I would be or what state I would be in. God promises a divine exchange in our verse for today. I can testify to this exchange—God has given me strength to endure when I had none left. The presence of struggle doesn’t mean He isn’t carrying us.

Rooted in Truth:

So how do we actually live in dependence on God?

“You will never cope with the demands of life in the Kingdom of God unless you are being recharged through prayer and listening to him.” Alexander Maclaren

a)       God’s Word – 

Being a daily Bible reader has strengthened my faith during this time. The disciplines of reading, meditating, and studying His Word are among the most essential things for a Christian to practice. Ps 119: 105 “ Your Word is a lamp to my feet and a light to my path.” Even when I didn’t feel strong—His Word held me steady

b)       Prayer  

We need to follow Jesus’ example of having a dedicated prayer life. Luke 5:16 “Jesus often withdrew to lonely places and prayed.” No one was more powerful in ministry and had more demands on His time than Jesus, and He shows us how essential prayer is. Prayer doesn’t have to be complicated. We have times of intense prayer, but sometimes mine sounds like: “Help me.” And in those moments, I began to sense His presence more deeply.

c)       Fellowship with other believers

Hebrews 10:24-25 “And let us consider how we may spur one another on toward love and good deeds, not giving up meeting together, as some are in the habit of doing, but encouraging one another, and all the more as you see the Day approaching.” The Bible is clear that we regularly need to meet with one another, especially in the context of the church, being the Body of Christ. God often strengthens us through His people. The people of God have given me so much encouragement, and worshipping with other believers has been a lifeline for me.

Restored by Grace:

 1 Peter 5:10 “And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm, and steadfast.”

He restores our strength to run.

Alexander Maclaren describes this running strength to be ‘power waiting in great crisis which calls for special, though brief exertion.” Also, power for ‘great tasks that are put on you requiring all your power.” He encourages us to wait on God so that when great difficulty comes, nothing is too hard.

Often in the chaotic moments at home, it feels like things are spinning out of control. The energy that is needed to restore some sense of order and peace is immense. Yet, I can truthfully say, I’ve been given it.

Things that have helped me in very intense moments and anxiety strikes:

·       Deep breathing with quick “help me” prayers
• Holding a sensory tool while reciting Scripture
• Repeating truth: “Jesus is with me.”
• Practicing gratitude
• Using short Scripture-based apps
• Lament—pouring everything out to God

·       Sending a text to my husband or a friend asking them to pray.

He restores our strength to walk.

Alexander Maclaren sees this as ‘patient power for persistent pursuit of weary monotonous duty” and to be “steady in unexciting work”.

We can all relate to doing unexciting, mundane work! When I became a mom, I realized how much of life is made up of repetitive, often overwhelming tasks—meals, laundry, cleaning, routines.  1 Cor 10:31 says “So whether you eat or drink, do it for the glory of God.”

Our house is a constant mess; it requires a lot of upkeep. I find it quite overwhelming. Things that have helped me through the dreary tasks:

·        Playing worship music

·        Repeating a verse over in my head

·        Praying

·        When it gets really overwhelming, I try to pop to what I call my ‘gas station’ (my bedroom or even the bathroom) for a few minutes of solitude to breathe deeply and pray.

 Rising in Hope

God gives us the strength to soar.

Alexander Maclaren describes this promise as the ability to rise above sorrows, sins, cares, and exchange burnout for buoyant motion high up in communion with God. This is about rising above our circumstances, not escaping them—but seeing them differently. Matthew Henry says we are carried above difficulty to lay hold of Jesus’ calling. We can have an inexhaustible strength—full of energy, hope, and endurance.

We should also have an eternal perspective. We set our affections on things above and have the power to bring heaven into our grasp. Our hearts and hope should be in heaven. Col 3:1-2 “Since, then, you have been raised with Christ, set your hearts on things above, where Christ is, seated at the right hand of God. Set your minds on things above, not on earthly things.” I think the more trials and difficulties we experience, the more hope we have in heaven. It doesn’t mean feeling suicidal, but we see that there is great hope in being in God’s glorious, eternal presence.

Though we are all aging, we can be encouraged that we are partakers of Jesus’ immortality and strength. Alexander Maclaren says that in the heart of our decaying nature is planted the seeds of an immortal being. Isn’t that amazing!

 I have felt this hope planted deep in my soul. I believe God has filled me with His Holy Spirit, which has helped me feel a joy that has been an undercurrent in the difficulties. I feel God has convinced me that He doesn’t waste suffering and will use each one for good.

 I’ve also experienced a rest that can only come from God, which has increased my hope. As much as I have felt the valley, I have also experienced the comfort of his rod and staff. That’s, I'd say, as acute as the valley.  There are no words to describe the beauty of God's comfort. I have felt it in the way of an unexpected moment to breathe, a friend texting out of the blue with encouragement, the Holy Spirit speaking into my soul with a verse or a word of knowledge, a wave of peace when crying out to God, and the practical help from our community, and of course the wonderful support of my husband who also walks this path with me. 

I feel a lot of hope for my family and me. There have been many victories along the way. I can see the kids are gaining a better understanding of God and who He is to them. Their greatest challenges will be their greatest testimony, and they will be able to help many others. Though I know there will always be challenges, I celebrate each victory, no matter how small it is, and there is great value in each precious child who possesses the very image of God.

Conclusion

If there’s one thing to take away, it’s this:
God doesn’t promise we won’t be weary—but He offers a divine exchange: our weakness for His strength.

So whatever season you’re in—whether you feel strong or completely exhausted—hold onto this truth:
When you depend on Him, He will renew your strength.

Lastly, I’ll leave you with a powerful analogy that our pastor gave in his sermon on Isaiah 40: this divine exchange is like walking on a moving sidewalk (like those at an airport). When we walk in the Spirit, He comes underneath us and bears us along. Sometimes it feels like we’re barely walking—but even then, He is carrying us forward.

 

 

 

Glory that far outweighs them all

Things are hard at the moment. They often are. I can feel the strain. I feel exhausted, depleted, unmotivated, heavy, and wanting to curl up and have all expectations leave me alone. I'm forcing myself to do even simple things and having to take regular breaks in between. I don't think I used to be like this! I think this is what living in daily trauma looks like, a nervous system that never gets to recover fully. When I'm at home or with the kids, I have a tight chest. I feel on edge and agitated. What will happen next? Who will explode, when, and for how long? I've been physically battered recently. It’s normal, but I feel it more right now. 


Two of my children are now displaying a lot of aggression and violence. One child is always more than the other, but the other is getting up there. They have started to get angry at the same time. It’s unsafe!!!! I've said it many times. It’a traumatic! This can't carry on! HOW do we teach them that this is beyond inappropriate? HOW?! I should have called the police the other day. Four of us were locked in a room while the other raged on outside. It was us or the house! Broke my bedroom door badly, and the house looked ransacked after. 


It takes hours to recover enough for me to properly function after an ‘episode’, and ‘properly function’ means something completely different now than it used to. Survive mostly. I don't ever fully recover as we bounce from one crisis to the next. I don't know how to keep living like this! 


I haven't given up hope that God is with me. There is no doubt in my mind. I was reminded yesterday that God is not indifferent to my suffering and deeply cares. Jesus, a Man of Sorrows, the Suffering Servant, the Great High Priest who can identify with our suffering sees me. Nicky Gumble writes, “In the life of Jesus, suffering and glory are inextricably linked. The moment he [Jesus] comes down from the mountain [from being transfigured] he explains to his disciples that ‘the Son of Man must suffer much and be rejected’ (v.12). Jesus’ ‘glory’ was of a different kind to that which the world expects, then and now.”


I find peace knowing that Jesus went through tremendous pain and suffering and doesn't expect us to go through what He didn’t. Different circumstances, but the feelings are often similar as we experience physical pain, rejection, accusations, opposition, judgement etc. I will choose to cling onto the One who fully understands and mercifully walks by my side in the depths. 


“For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.” 2 Corinthians‬ ‭4‬:‭17‬ ‭

They don't seem light or momentary, that's the honest truth. It almost seems insulting that the Apsotle Paul would suggest that, but Paul is drawing our attention to a comparison. Our troubles are light in comparison to the glory that awaits us if we keep persevering. It’s something we can only imagine. 


I needed to remember that today. I already feel a little more peaceful and can breathe deeper. I pray you can too. 

Even though I walk through the valley.



Psalm 23 is a well-known scripture that offers comforting words, reminding believers of God's loving guidance during difficult times.


I've been a Christian for most of my life. I grew up in a Christian family and felt God reveal Himself to me from an early age. I have always felt His loving, tender hand in my life. What a gift that is! Of course, I went through ‘stuff,’ and it wasn't always picture perfect, but I never knew what the Psalmist, David, meant when he said; though I walk through the darkest valley, I will fear no evil for you are with me, your rod and staff they comfort me.

In the last few years, I feel I have had a glimpse into the valley, the dark, cold, frightening gorge. I have felt oppressive darkness like I never have before, and I have heard the roar of the enemy. It has been deep, overwhelming, and agonizing. The trauma of household chaos, violence, aggression, and explosions at any given moment has been part of my valley. I've ended up in the fetal position and weeping many times, asking God why He isn't calming the storm and what I am doing wrong. The consistency of being on-call to manage my family’s emotions and behaviour. Not seeing positive outcomes from the endless strategies I have tried. Seeking help from professionals, but with little success. Despairing at the destruction of property and hurt children because of the violence. Wondering how a family that is committed to following the Lord could be so disorderly and rude. Feeling the fear and anxiety of not knowing what will happen next.

BUT then, there is the comfort of his rod and staff. That’s, I'd say, as acute as the valley. Jesus said in the Sermon on the Mount, "Blessed are those who mourn, for they will be comforted” (Matthew 5:4). I recently read in a devotion by Nicky Gumble, quoting Joyce Meyers, “It’s almost worth having a problem to be able to experience [God’s comfort].” Whether I'd agree with that statement in the moment of great distress, maybe not, but there are no words to describe the beauty of God's comfort. I have felt it in the way of an unexpected moment to breathe, a friend texting out of the blue with encouragement, the Holy Spirit speaking into my soul with a verse or a word of knowledge, a wave of peace when crying out to God, and the practical help from our community. It's the little moments that bring relief, when I am reminded that God hasn't left the picture, that He does care, and that He is working all things out for good. That is when I feel the sense of His rod and staff; a constant beacon of hope in the dark ravine.

Would I change my circumstances if I could? Probably, but trusting God's sovereignty helps me see that hardships, like Joseph's, prepare us for what lies ahead and teach us valuable lessons.
Psalm 23

The Lord is my shepherd; I lack nothing.
2     He makes me lie down in green pastures,
He leads me beside quiet waters,
3     he refreshes my soul.
He guides me along the right paths
    for his name’s sake.
4 Even though I walk
    through the darkest valley,[a]
I will fear no evil,
    for you are with me;
your rod and your staff,
    they comfort me.

5 You prepare a table before me
    in the presence of my enemies.
You anoint my head with oil;
    my cup overflows.
6 Surely your goodness and love will follow me
    all the days of my life,
and I will dwell in the house of the Lord
    forever.

When Chaos Reigns


It can sound like a hurricane hit; crashing, things falling/being thrown, screaming, shouting, shrieking! It can look like a hurricane tore through the house; navigating the jungle of toys out, random objects on the floor, cupboards open, shoes and coats thrown, food on the counters and floors. This may sound like your house, or maybe you're wondering what kind of parent doesn't control this mayhem. If it sounds like your house, we can relate. It is more extreme for us than for the average home with kids; executive functioning skills are still very much in their infancy. If you're wondering what kind of parent can't bring some control, I don't blame you! I wonder that myself. Don't get me wrong, it isn't always like this, but a good chunk of the time, it is. It isn't for lack of trying, I assure you! It isn't even that the kids aren't capable; they are, but in the hustle and bustle, when emotions are running high, when everyone uses home as a place to let it all out, this is what can happen. Perhaps someone is having a severe meltdown, and the others have given up on getting attention from mom and dad, so they've made their own food or decided to engage in a messy activity that passes the time. Then there is the mental exhaustion of the parents. I cannot overstress the emotional toll of dealing with these meltdowns. I could crawl up in a ball and hide in a hole; it takes so much out of me - but that's out of the question. You have to pull yourself together and keep going. But am I up for bringing order to the disarray? No! So chaos often reigns. 


This isn't a pleasant living environment for anyone. Though we strive to make things better and pray they will get easier, we find ourselves in this hurricane. Where is God in the chaos? I have given this a lot of thought. I know He is there! I don't question that, but when the Psalms declare He is a very present help in times of trouble (Ps 46:1), how does this look in the insanity?


I often find that worship songs play through my mind amid the chaos. It is subconscious at first, and then I take note and register the words playing through my head. They are usually something I can hold onto in that moment or day. 


Our community is an excellent source of support that embodies God’s care for His people. “He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.” 2 Corinthians 1:4. People reach out when I most need it, or offer practical help. 


I have noticed over time that God often takes me out of a situation for a bit as a breather. The odd unexpected break when someone can take the kids, when the kids quietly get into a nice game together, and I can rest on the couch, my husband takes over, and I can lock myself in my room, when we can meet with friends, and the kids happily play. The scheduled break from going to work is a welcome distraction. I used to feel guilty about taking regular breaks, but now I realize they are a God-given lifeline. 


Helpers have blessed me, I believe, that God sent my way to help practically, with the occasional meal, assistance with cleaning, and laundry. I also thank God we live in an age where we can have our groceries delivered. 


God doesn't promise to take us out of the chaos, but he does promise to be with us. Sometimes we feel it, sometimes we don't. But He is there, providing moments of relief, help, and strength. When chaos appears to reign, we can take comfort in the fact that He is our haven. 


“The Lord is a refuge for the oppressed, a stronghold in times of trouble. Those who know your name trust in you, for you, Lord, have never forsaken those who seek you.”

‭‭Psalms‬ ‭9‬:‭9‬-‭10‬ ‭NIV‬‬

Co-Regulator


Have you ever had to tell yourself to put one foot in front of the other? I don’t mean metaphorically, but literally. I have and still do. ‘Keep moving forward,’ I tell myself. I find myself counting ‘1, 2, 3’ repeatedly in stressful moments. 

For me, it's often caused by never knowing when my children will have a meltdown and I will need to be their ‘co-regulator’ as the professionals say, or their crisis manager. These meltdowns can be severe and not something I can handle alone, but I do. This has brought me into a perpetual state of anxiety. Never knowing what a trigger will be and never knowing how severe or prolonged the episode will last is in itself anxiety-inducing, and then add on other stressors in life. 

What is a ‘co-regulator’ anyway? From my understanding, the idea is that one person can help another regulate their emotions (calm down from a heightened state of negative emotions). The Child-Mind Institute says:

“There is science behind co-regulation. Our own stress can make another person feel stressed; our calm can make another person feel calm. Successful co-regulation between a responsible adult and a child involves helping the child calm down on their own — which is why the first step to co-regulation requires you to deal with your own stress in a healthy way.”

So, as parents or those responsible for children, we are meant to invite the children into our own calm, which, of course, requires staying calm in heightened moments. Naturally, I would say I’m good at that. In my previous job, which involved caring for vulnerable people, I remained relaxed even in high-pressure situations. I have been described as being ‘as cool as a cucumber’. I have an odd way of being calm during a big crisis, but not over something more trivial, like whether someone is having a good time at a party I am hosting.

After years of dealing with many, many, many meltdowns from my children with special needs, I feel my calm is breaking, and I have a greater sense of anxiety and am quicker to react. I certainly have to put more effort into staying calm. There are many times when I don’t manage to remain even-tempered. After being hit, hurt and insults hurled at me or my family members, I am not quite so able to stay in my ‘calm demeanour’. I get elevated. Of course, that doesn’t help the situation or the person I am supposedly ‘co-regulating’.

So, how can I allow the Holy Spirit to be my ‘co-regulator’ in the intensity of the day, in or between the stressful times? I don't mean when there is time for sitting, praying or devotionals. I mean, in the moment when anxiety is building, things are happening out of my control, and I need steadying. I’m not an expert in any of this, nor have I perfected it. I struggle in this area, and I won’t pretend I don’t, but here are some things I do to try to allow the Holy Spirit to bring me into His calm.

  •  A Christian professional recommended I have a spiky sensory cylinder and, while squeezing it, repeat a Bible verse. I often have this cylinder in my pocket and repeat John 14:27, “Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.” The spikes of the cylinder immediately remind me of the verse.
  • Deep breathing and ‘box breathing’, while praying quickly, ‘help me’ prayers, allow me to call on and remember the only One who can bring peace.
  • Chanting or repeating ‘Jesus is with me’ conveys the truth to my soul, allowing me to move forward and push through.
  • Thanking God that He is capable, that He is big enough, and that He can handle the situation even though I can’t reminds me that it is not me who can fix the problem, but God.
  • Letting the emotion out and pouring out my sorrow and lament to God. This releases emotions and puts them where they belong: at the foot of Jesus. (I think it is essential to feel the feelings; they are, after all, God given.)
  • Meditating on a verse, and reading it over and over or calling to mind scripture I have memorized.
  • I have recently learned of a couple of Christian meditation Apps that provide a quick devotion, verse, calming music, etc. Two I have come to know are 'Abide' and 'Soultime'.
  • Play worship music - this has helped to centre me and bring peace.
  • Go to a quiet room (often the bathroom), even for a few seconds, to cry out to God. Another professional recommended putting a note in my bathroom that says 'Gas Station' to remind myself that I am filling up on 'gas' when I'm running on empty.

NOTE: It is essential to involve medical and mental health professionals when needed. God uses many avenues and people. Sometimes chemical imbalances occur, and that is nothing to be ashamed of. Seeking professional help is a sign of strength and a step towards healing.

I am grateful we are not alone. Jesus said the Holy Spirit was sent as our helper. What would I do if I couldn’t call on Him? I don’t want to know! I hope and pray that I can teach my kids, even by modelling it, to call on the Holy Spirit to be their ultimate ‘co-regulator’.

The Extraordinary Road

 

I, like most people, like to fit in with the crowd. I don't like to stand out or have the attention and focus on me. I want to be ordinary, a regular Joe (or Jane). Partially, it is my personality, as an introvert, I get tired when I've had a lot of people interaction, so fitting in minimizes the need to explain things or have the focus on me. Partially, it is a selfish desire for approval; it is more comfortable. As a Christian, I understand the call of Jesus is higher than living in my bubble for a quiet life. Jesus asks us to pick up our cross and follow Him, stepping out of our comfort zone for His Kingdom. This means being called to be different and responding to others' questions about why we are.

He also sometimes puts us in circumstances that are far from ordinary, and this is where my husband and I have found ourselves the past few years: travelling on an extraordinary road with children with multiple extra (neurodivergent) needs. Life looks different for us, it just does. I wrestled with this for a long time. Why couldn't we do what other families were doing? Why couldn't our children handle things that seemed easy for others? What were we doing wrong? So we just pushed in, under enormous stress, trying to do what other families do. But what was going on? Why were there so many meltdowns and opposition? Why was even getting out of the house a living nightmare?

The multiple, extreme, violent meltdowns were what finally clued me in. Maybe it wasn't us as parents, perhaps something else was going on? It was a long journey where God graciously started revealing our kids' unique needs. It was devastating and validating simultaneously.

It was a journey of grief. We were grieving the life we expected and the challenges our children would face. We went through all the grief stages (and still go back and forth at times) and then, for the most part, came to acceptance. Even though life is exceptionally hard a lot of the time and we honestly wish it wasn't, we thank God for diversity and the ability to look at life with greater perspective, understanding, empathy, and appreciation for the small things.

Our road is extraordinary. We don't present the way many families do. Often, it feels like we are a whirlwind, a ball of chaos, a torrential rain. It is incredibly stressful and turbulent, I don't enjoy that, but there is great beauty in every victory, in each precious child who possesses the very image of God, who professes Jesus as their Saviour and can honestly say He can help them do hard things.

The road is rough, rocky, windy, and uncomfortable. There is no pretending that it is easy. It does, however, at times, offer excellent vantage points of scenery you wouldn't see anywhere else. It’s a track that builds resilience and character like no other. God knows what He is doing. He doesn't make junk or mistakes. He has good plans for all His children.

We will keep navigating this crazy road with the grace of God and those He has put around us. Never have I known my need of God more! We will endeavour to be real and allow the discomfort of being different to be a strength. It is God who lights our way. I truly believe God will use our children and their challenges to help others and be a testimony of God’s ability to create diamonds in the rough.

This blog is my narrative of our travels on this unique voyage. I can't give much advice about how to help struggling children, but I can provide my understanding and empathy as a parent to another on this extraordinary road.

“And we know that in all things God works for the good of those who love him, who have been called according to his purpose.” – Romans 8:28

 

 

Stand Firm in the Raging Storm

The last couple of years have been incredibly challenging for our family. It has felt insurmountable. Too much. Never-ending. Completely overwhelming. 

Several of our children have various neurodiverse disabilities. As a result, we have fought more battles than I ever thought possible, leaving me and my husband physically, mentally, and spiritually worn to the ground. I never thought life would look like this. It has been extreme. Extreme behaviours, extreme dysregulation, extreme violence, and extreme struggles with executive functioning skills. I have been feeling trauma that I have never known before. But in the midst of this, I've also experienced moments of grace and strength that could only come from God. Of course, we love our kids and will continue to fight for them. We know our path is extraordinary. And God has allowed it for reasons, I’m sure we don’t fully understand yet.

Recently, I have been reflecting on the life of the apostle Paul, who writes in 2 Corinthians 1:8-9a

“We do not want you to be uninformed, brothers and sisters, about the troubles we experienced in the province of Asia. We were under great pressure, far beyond our ability to endure, so that we despaired of life itself. Indeed, we felt we had received the sentence of death.”

This verse struck me because the situation we are in has felt so high-pressure and far beyond my ability to cope. I can relate. Paul even despairs of life itself! These are not insignificant troubles that they are facing! It is fierce and leads them to a place of hopelessness in earthly life.

The end of verse 9 tells us Paul’s perspective on why they had to go through this:

“But this happened that we might not rely on ourselves but on God, who raises the dead.”

2 Corinthians 4:7-9 – “But we have this treasure in jars of clay to show that this all-surpassing power is from God and not us. We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed.”

Paul's words remind us that God brings us to humility in our weakness, often through difficulty. But in these moments, we realize our need for Him, and His strength is revealed. It's a transformative process that can inspire hope and resilience, showing us that even in our darkest moments, there is a light of faith that can guide us through.

When we realize how desperately we need Him, how do we rely on Him and allow His strength to be manifested in and through us? 

God has been speaking into my heart about staying rooted in Him and ‘standing firm’. If we do this, even in the raging storm, we aren't thrown and tossed about. 

1 Corinthians 15:58:

Therefore, my dear brothers and sisters, stand firm. Let nothing move you. Always give yourselves fully to the work of the Lord, because you know that your labour is not in vain.

1 Corinthians 16:13-14:

“Be on your guard; stand firm in the faith; be courageous; be strong. Do everything in love.”

What does it mean to stand firm? To stand firm in our faith means to be steadfast, unwavering, and immovable in our commitment to Christ, no matter the situation. With God's help, we resist temptations, false teachings, and the enemy's attacks. It means staying rooted in God’s Word, persevering in prayer, and allowing ourselves to grow in Spiritual maturity. We rely on God's truth and not on our feelings, even in (or especially in) the face of challenges and opposition.

We need help from one another to stand firm: In trial, it can become challenging to stay focused on God and His Word when there is so much distraction. We need our fellow brothers and sisters to walk alongside us and encourage us. 

Hebrews 10 24-25:

“And let us consider how we may spur one another on toward love and good deeds, not giving up meeting together, as some are in the habit of doing, but encouraging one another – and all the more as you see the Day approaching.”

Galatians 6:2

“Carry each other’s burdens, and in this way you will fulfil the law of Christ.”

I encourage you to hold onto Jesus and allow Him to work good through whatever situation you are facing. Pray, read the Bible - small chunks a day, and thank God for His goodness.  Life can be complicated; it can hurt, and it's okay to feel and express that. But trust God with the outcome; He doesn’t waste our sufferings. One day, we will look back and see the beauty God brought from ashes. 

Reach out to others – the ones you trust. Perhaps a mental health professional.  It can be terrifying to be vulnerable with others, so ask God to tell you who to reach out to. Then, take a step of faith and allow them to support you. We weren’t meant to travel this journey of life alone. 

1 Corinthians 12:26 - 'If one part [of the body of Christ] suffers, every part suffers with it; if one part is honoured, every part rejoices with it. '

Romans 12:15 - "Rejoice with those who rejoice; mourn with those who mourn."

If Only People Knew


 If only people knew the trauma of having a child with autism who reacts with violence and aggression multiple times a day. The fear and anxiety it creates. The fear of the siblings getting seriously hurt, the fear that this beautiful child, whom you brought into this world, will not be able to grow out of it. What would the consequences be?

“I don't see it,” others say. " She doesn't seem autistic to me.” If only they knew what it is like to be their child’s ‘safe’ person, and behind closed doors, all masks are down, and the gloves are off. It is an unseen battle that scars the soul.

“Have you tried this?” " Have you tried that?” “I would do this,”” I would do that,” "I did this with her today and it worked, you should try it", and the clincher, “You need to discipline your children more.” The wounds to these words go deep because YES, we have tried, tried, and tried!!!

The judgment—the public meltdowns, the screaming in the neighbourhood, the neighbourhood kids asking why their friend is hanging out their window, screaming that she is locked in, the arguments, yelling, and screaming that happen within earshot of anyone.

The physical pain - being hit, punched, kicked, bitten, scratched, things thrown at you. Worse still, pulling muscles trying to restrain or move them into a room for safety, which becomes increasingly difficult/impossible.

Verbal abuse- they might be young, but somewhere they learnt some bad words and hurtful sentences. Yes, you're the parent and shouldn't be intimidated, but the threats and accusations wear you down.

The defiance—flat-out resistance to everything—the emotional energy it takes to win the simple battles in life, do daily tasks, and do what it seems others take for granted.

The distress- the feeling of being overwhelmed, failure, hopelessness, anxiety (oh the anxiety), pain of watching your child struggle and not knowing how to help and your other children exposed to behaviour, abuse, and words they should never be exposed to. Watching your child have severe separation anxiety from you and feeling the guilt of wanting to bolt at any given opportunity.

The confusing advice from the professionals is that one says this, one says that, one seems to ignore the sin issue, and one ignores the extra needs.

The lack of support—you can apply, but you’re on the longest waiting list in the world and have no idea what support will look like. What resources are available anyway? It’s a jungle to navigate. I didn't expect it. Even going to extremes to find support and help, ie, a two-week traumatic hospital admission and coming out with little.

The relational strain—Navigating this with a partner is much better than not, but the reality is that you are both under great strain, which causes some friction and damage.

The expense - money for therapists, quick food (because even cooking can be difficult, especially when meltdowns and arguments happen), items for quick convenience, drywall/paint/ doors for damaged things, locks on cupboards to secure knives, sensory toys/ equipment, prescriptions, etc. Thank goodness for a government that gives a tax credit.

The exhaustion - being woken during the night or in the morning, sometimes by being screamed at and punched, the constant demand as the primary caregiver who is seen as the answer to and cause of all their problems, the emotional toil of breaking up fights, calming people down, managing everyone's emotions and your own, the physical strain of restraining, blocking and moving into a safe places, and keeping the house in reasonable shape in all the chaos.

The time—the appointments: doctors, therapists, OTs, and physiotherapists. I often joke that my life is one big appointment.

The others—you are concerned for your other children and how they will handle all the stress at home. They aren't angels either, and they can push buttons, but overall, you wonder how it will affect them in the long run. They mimic behaviour, too. Aggression gets attention, so they all take turns if the others are calm. I'm told that it is common.

The expectation—though we aren't guaranteed anything, we do expect (or hope) we will have a life that looks a certain way (especially as Christians), and when it doesn't, it feels like a failure in some way. It certainly needs time to grieve what you thought you had, but it looks very different.

The summer—‘Are you excited for the summer?’, ‘Do you have any nice plans?’ Actually, I am fearful that I am losing all my support and will have to manage it alone. Everything intensifies, and there is little break from it.

Keeping it together—it’s not pleasant having everyone know your business, and for the sake of your child, you don't want everyone to know. Keeping up appearances seems ridiculous, but it is also necessary for survival.

I will always declare and believe that God is good and keeps us afloat, but perhaps I don't express enough the trauma that having a child with extra needs can bring. I have struggled with depression, fear of being left alone with my children (and feeling ridiculous for it), and I have wondered if Jesus cares and why he is sleeping in the boat when the storm rages. I have felt angry and alone. I never doubt God is there, but maybe I am seeing it is ok to lament, grieve, and say ‘I’m not ok and this isn’t ok’, while fully believing that the joy of the Lord is my strength. It is an undercurrent that I know more than I ever have. I choose to believe there is a greater plan; God will use this and bring beauty from ashes.

To others going through this, I'm sorry if I ever judged you without understanding the daily battle. Now I get it. It's so painful. I am truly sorry! I can hear you say, ‘If only people knew. ' All I can say is that God sees you, and you are not alone.

The Extraordinary Road

The Extraordinary Road

  I, like most people, like to fit in with the crowd. I don't like to stand out or have the attention and focus on me. I want to be ordi...